What is Prader-Willi syndrome?

Prader-Willi syndrome is a very rare genetic condition affecting approximately 2000¹ adults in the UK. It is caused by a defect of chromosome 15 and affects the brain in a number of ways.

This has a significant impact on the mental, physical and behavioural well-being of people with Prader-Willi syndrome. It can lead to the development of a variety of complex needs including learning disabilities, physical symptoms and behavioural problems.

Normally diagnosed shortly after birth, it is most commonly associated with an excessive appetite and overeating, weight gain, a lack of muscle tone and delayed growth. There is no cure for Prader-Willi syndrome.

How we support people with Prader-Willi syndrome

A person living with Prader-Willi syndrome can still lead a healthy, fulfilling life when they have consistent support from people who understand the condition.

As part of our dedication to providing tailored care and support for each person living with the syndrome, we have developed our Prader-Willi syndrome specialism. This includes a Prader-Willi syndrome professionals group, who drive continuous improvement in this area.

We also provide specific Prader-Willi syndrome training for our staff teams. Our staff work to the highest standards of best practice, recognising that every person with the condition has their own unique qualities, interests and challenges.

To learn more about how we support people with Prader-Willi syndrome, visit our dedicated webpage.

We are also proud to have recently become Gold members of the PWSA.

Commitment to quality

We pride ourselves on providing great quality care for the people we support and as part of this, we ensure that all managers and staff are kept up to date with ongoing standards for the delivery of care via our internal quality mark which our care homes and community support hubs will work towards gaining.

Our Care Quality Commission ratings are sector-leading, with 95% of our locations, including our Prader-Willi specialism services, rated as either Good or Oustanding². This is much higher than the national average.

To find out more about our commitment to quality, visit our dedicated webpage.

¹ Figure taken from PWSA.

² Data correct as of April 2021

Find out where we can support you

loading...
  • Residential care home

  • Brain injury service

  • Specialist service

  • Community support

  • Children's service

  • Group of services

If you need further advice, call our friendly enquiry line on 0800 035 3776 or email referrals@voyagecare.com
Supporting Chris to live a happy and healthy life at Esmer House
Prader-Willi syndrome

Supporting Chris to live a happy and healthy life at Esmer House

Chris moved to Esmer House, our specialist Prader-Willi syndrome service in February 2020. Living with Prader-Willi syndrome Chris has Prader-Willi ...

How Esmer House has changed Lauren’s life for the better
Prader-Willi syndrome

How Esmer House has changed Lauren’s life for the better

Lauren moved to Esmer House, our specialist Prader-Willi syndrome service In January of 2020. Since living here, she has achieved ...

Chaos to calm – Tara’s Prader-Willi syndrome story
Prader-Willi syndrome

Chaos to calm – Tara’s Prader-Willi syndrome story

The words “blood test” were whispered between staff at our Uttoxeter services, who were carefully devising a way to make ...

Evan – Timid to transformed in less than two years!
Prader-Willi syndrome

Evan – Timid to transformed in less than two years!

With a small audience of our staff and other people we support, Evan* tells a funny story in a way ...

Make An Enquiry