What is Prader-Willi syndrome?

Prader-Willi syndrome is a very rare genetic condition affecting 1 in 22,000¹ people worldwide and there are approximately 2000¹ adults living with the condition in the UK.

The condition caused by a defect of chromosome 15. This defect affects the part of the brain in charge of managing hormones, controlling appetite and regulating emotions. 

This has a significant impact on the mental, physical and behavioural well-being of people with Prader-Willi syndrome. It can lead to the development of a variety of complex needs including learning disabilities, physical symptoms and behavioural problems.

Normally diagnosed shortly after birth, it is most commonly associated with:

  • Excessive appetite and overeating
  • Weight gain
  • A lack of muscle tone
  • Delayed growth

Although there is no cure for Prader-Willi syndrome, with the right care and support in place people with the condition can lead long, healthy, fulfilling lives.

To find out more about Prader-Willi syndrome, you can read our blog, visit the Prader-Willi Syndrome Association UK (PWSA) website or visit the NHS website.

How we support people with Prader-Willi syndrome

A person living with Prader-Willi syndrome can still lead a healthy, fulfilling life when they receive the correct support from people who understand the condition.

As part of our dedication to providing tailored care and support for each person living with the syndrome, we have developed our Prader-Willi syndrome specialism. This includes our internal Prader-Willi syndrome professionals group, comprising a number of Voyage Care colleagues who drive continuous improvement in this area.

We have 13 specialist Prader-Willi syndrome services across the UK ranging from residential care homes to community and supported living services. – in banner below

We also provide specific Prader-Willi syndrome training for our staff teams. Our staff work to the highest standards of best practice, recognising that every person with the condition has their own unique qualities, interests and challenges.

To learn more about how we support people with Prader-Willi syndrome, visit our dedicated webpage.

Commitment to quality

We pride ourselves on providing great quality care for the people we support. As part of this, we ensure that our teams are kept up to date with ongoing standards for the delivery of care. We do this via our internal quality mark which our care homes and community support hubs will work towards gaining.

89% of our locations, including our Prader-Willi specialism services, are rated as either Good or Oustanding² by the Care Quality Commission.

To find out more about our commitment to quality, visit our dedicated webpage.

¹ Figure taken from PWSA.

² Data correct as of June 2024.

Find out where we can support you

loading...
  • Residential care home

  • Brain injury service

  • Specialist service

  • Community support

  • Children's service

  • Group of services

If you need further advice, call our friendly enquiry line on 0800 035 3776 or email referrals@voyagecare.com
Specialist Prader-Willi syndrome support empowers Martin’s independence!
Prader-Willi syndrome

Specialist Prader-Willi syndrome support empowers Martin’s independence!

Martin is a person we support at Mason House, our specialist Prader-Willi syndrome residential care home located in Retford, Nottinghamshire. ...

Prader-Willi syndrome support transforms Charlotte’s life
Prader-Willi syndrome

Prader-Willi syndrome support transforms Charlotte’s life

Charlotte is a person we support at Mason House, one of our specialist Prader-Willi syndrome residential care homes in Nottingham. ...

Teresa takes back control of her life!
Prader-Willi syndrome

Teresa takes back control of her life!

For some people, food, (cooking and eating), is an exciting and enjoyable part of their day. For others, food is ...

Claire achieves independence as she moves into her own bungalow!
Prader-Willi syndrome

Claire achieves independence as she moves into her own bungalow!

Meet Claire! Claire is a person we support at Landau Lodge, one of our residential services in Yorkshire. She enjoys ...

How The Laurels is the perfect fit for Lottie
Prader-Willi syndrome

How The Laurels is the perfect fit for Lottie

This week we spoke to Lottie*, a person we support in Hampshire at our residential care home, The Laurels. When ...

Supporting Chris to live a happy and healthy life at Esmer House
Prader-Willi syndrome

Supporting Chris to live a happy and healthy life at Esmer House

Chris moved to Esmer House, our specialist Prader-Willi syndrome service in February 2020. Living with Prader-Willi syndrome Chris has Prader-Willi ...

Make An Enquiry